Resources for People with Disabilities on COVID-19

Disability Resources on Covid-19 from the American Association on Health and Disability

• Lurie Institute for Disability Policy: Important Things to Know about COVID-19

• Q&A on COVID-19 and Down Syndrome (abbreviated)

• Q&A on COVID-19 and Down Syndrome (extended)

• New York Deaf-Blind Collaborative Tip Sheet: Providing Access through Sign Language & Text for Low Vision & Tactile Communicators During the Coronavirus Pandemic

• Green Mountain Self Advocates: Plain Language Fact Sheet on COVID-19

• UNC Child Development Institute: Supporting Individuals with Autism through Uncertain Times

• Wheelchair and Assistive Technology Users Precautions for COVID-19

• National Alliance on Mental Illness (NAMI): COVID-19 Resource and Information Guide

• Spina Bifida Association: Coronavirus (COVID-19): What People with Spina Bifida Need to Know

• COVID-19 Disability Form(to be completed by or for an individual with intellectual disabilities or communication difficulties)

• Recommendations from County Behavioral Health and Developmental Disability Directors

COVID-19 & State Policies, including Medicaid

• CMS: Coverage and Benefits Related to COVID-19/Medicaid and CHIP

• CMS: COVID-19 Long-Term Care Facility Guidance

• CMS: Medicaid Telehealth

• Kaiser Family Foundation: State Data and Policy Actions to Address Coronavirus

• Kaiser Family Foundation: Medicaid Emergency Authority Tracker

• Kaiser Family Foundation: How Can Medicaid Enhance State Capacity to Respond to COVID-19?

• National Academy for State Health Policy: States Use Federal Waivers to Expand Health Care Resources to Confront COVID-19

• National Association of State Directors of Developmental Disabilities Services: List of Resources (includes State Specific Info)

• National Health Law Program: Overview of the Medicaid-Related Provisions of the Coronavirus Response Packages

• National Health Law Program: COVID-19 Changes to HCBS Using Appendix K:  Approval Trends

Advocacy Resources

• HHS Office for Civil Rights Bulletin: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (March 28, 2020)

• Disability Rights Education Defense Fund: Know Your Rights to Medical Care – COVID-19 (English/Spanish)

• Disability Rights Education Defense Fund: Know Your Rights to Medical Care – COVID-19 (English/Chinese)

• Coalition letter (joined by AAHD) to Hospitals Providing Guiding Principles for Avoiding Disability Discrimination in Treatment Rationing (April 3, 2020)

• AAPD: How The Disability Community Can Respond to COVID-19

• Alabama Disabilities Advocacy Program: Complaint with HHS Office for Civil Rights (March 24, 2020)

• Center for Health Care Strategies: Stemming the Risk of Disability Bias During the COVID-19 Pandemic

• Law Journal Article by Samuel R. Bagenstos: “May Hospitals Withhold Ventilators from COVID-19 Patients with Pre-Existing Disabilities?”

• International Disability Alliance: 10 Recommendations toward a Disability-Inclusive COVID19 Response

Governmental Resources

• Coronavirus.gov

• Centers for Disease Control

• Centers for Disease Control: People Who Are at Higher Risk for Severe Illness

• Centers for Disease Control: ASL Videos on COVID-19

• Administration for Community Living (ACL): COVID-19 Webpage

• ACL: Q&A for Older Adults and People with Chronic Health Conditions

• National Institutes of Health

• IRS: Coronavirus Tax Relief and Economic Impact Payments

• Coronavirus.gov

• Centers for Disease Control

• Centers for Disease Control: People Who Are at Higher Risk for Severe Illness

• Centers for Disease Control: ASL Videos on COVID-19

• Administration for Community Living (ACL): COVID-19 Webpage

• ACL: Q&A for Older Adults and People with Chronic Health Conditions

• National Institutes of Health

• IRS: Coronavirus Tax Relief and Economic Impact Payments